Port Elgin and area is getting ready for the 4th annual Swing Shoot & Liv Golf Classic Fundraising event for rare “ Orphan Metabolic Disease. Paint the Town Purple Campaign in Saugeen Shores raises awareness of cystinosis, a rare genetic disease that 6 years old Olivia, Little battles. The local communities including Southampton, Sauble Beach and area businesses and people display Purple Bows and ribbons around the towns.
The Livalittle Foundation was set up by Olivia’s parents to help find a cure.
Purple Ribbons and bows can be purchased at Keepsakes & Memories Flower shop and Gifts in Port Elgin.
More about the foundation:
The Liv-A-Little Foundation was incorporated in 2013 by the Little family who’s main focus is to find a cure for cystinosis after their oldest daughter Olivia Little was diagnosis at 18 months of age with this debilitating disease. Prior to officially becoming the Liv-A-Little Foundation the support from family, friends and local community was overwhelming prompted by a charity golf tournament hosted by the Saugeen Shores Winterhawks to raise awareness and funds to support the cause. Since then the Foundation has partnered by with the Cystinosis Research Foundation based in Irvine, California who is the world leading foundation dedicated to funding cystinosis research.